Hark! Come gather ye round to hear the tale of Alex and Alexandra, who live lives touched by Williams syndrome! The show is joined today by Alexandra Reneer, an adult with WS living in Utah. She shares with us how being a dancer has allowed her to stay physically healthy and gives her the confidence to teach dance to others with developmental disabilities! Then we're joined by Alex Chiarappa. She is the mother to 5-year-old Collins and almost 2-year-old Jax, who has WS. She shares their journey through these first couple of years and how she uses Yoga to center herself and find mindfulness through stress. Her 2nd annual Stretch into Rest Fundraiser is coming up soon. More information HERE.

The WSA team is in Phoenix, AZ, doing more prep work for the upcoming WSA Convention, July 9-13, 2024, at the Downtown Hyatt Regency Hotel. Since the room block will be available for reservations starting Wednesday, January 10, we thought it would be a good time for more convention talk! Nick and Lindsey are back to talk about how preparations are coming. Then Jen is joined by Jen...Jen Chaplin, the WSA Convention Czar, who is handling all the logistics here in Phoenix!  If you want to see the video version of them touring the hotel, please check out the video version of the podcast available at https://www.youtube.com/@Williams-syndromeOrg. Questions about the convention? Email convention@williams-syndrome.org. 

Happy Holidays from all of us at The Starry-Eyed Effect! It's a very special episode as we're joined by Anne Lemieux-Pocock, who, in addition to being Brendan's mom, is an accomplished writer. She's sharing her journey of being a mom to an individual with WS in beautiful chapters called "Being & Becoming: A Williams Syndrome ‘Mom-oir'” available at https://medium.com/@annelemieuxpocock. Then we're joined by Tobi Akbas and Business Insider writer Hayley Cuccinello to talk about a fantastic article available now at https://www.businessinsider.com/what-its-like-williams-syndrome-living-loving-strangers-2023-12.   Thank you all so much for joining us in our first year of the show. We can't wait to bring you more stories in 2024! Email us at podcast@williams-syndrome.org

Look...did I have a whole other episode planned and then couldn't get it scheduled and was bailed out by awesome Board member Scott Ottenheimer? Maybe, but we were always going to have Scott as a guest! As his time on the WSA Board of Trustees comes to a close, Scott talks to Brendan and Jen about his time serving the WSA and how it has set the organization up for the future! As a community, we are so lucky to have amazing people like him advocating for not only what he is passionate about but what is going to be best for our entire WS community. Thank you, Scott, for your leadership!  

In this episode, Jen, Brendan, and Producer Joel delve into the crisis in this country surrounding parents and caregivers of individuals with developmental disabilities - specifically Williams syndrome. After watching the documentary "UNSEEN: How We're Failing Parent Caregivers & Why It Matters" (which you can watch at www.caregiverdoc.com), they share their reactions for the first time in the recording.  Then, WSA Vice-President of Programs and Services, Sarah Giddings, joins to talk about how the WSA makes an intentional effort to provide education and resources to our community in an effort to alleviate the stress felt by parents and caregivers. She also shares her experiences as a parent to Matthew, her son with WS. We hope that this episode helps spark conversations about how this country can do better for families and caregivers. Also, please check out the 2023 WSA Holiday Gift Guide this giving season.

Brendan joins from Austin, TX, where he just wrapped a weekend of working with the WSA Board of Trustees. What is that like? Well, he tells us. Then Jen and Brendan talk to Lindsey and Nick about planning the 2024 WSA Convention in Phoenix, AZ! Look out for Haboobs!!

Make sure the little ones are off to dreamland because this week, Jen and Brendan have terrifying tales of horrors, hayrides, and haunted houses! Joining the show is Megan McNeil and Julie Polansky to share everything they love about this ghoulish holiday. Then the gang gets together to bust some myths about Halloween and about Williams syndrome! Are you brave enough to listen?! Mwaaaahahahahahahahahahahahah!!!! 

Dust off your finest prêt-à-porter cause we're going to the society pages! Jen and Brendan catch up with Callie Truelove to share gratitude for red carpet premieres, celebrating stories, and everything surrounding the release of Truelove: The Film. Then, Joel joins Brendan to talk to Camille and Anthony Filippazzo about building community and the importance of medical research into WS with the AF Research Grant. Think of how good Joel would look in a little "off-the-shoulder number" at the "A Night of Love, A Celebration of Life" event on November 3rd in Brooklyn, NY. As Walter Winchell used to say at Sardi's, "Cowabunga!"

Producer Joel is live in Orlando with the Adventure Seekers (the group of adults (18+) with WS. This trip was a couple of years in the making, with around 150 individuals with WS and their parents/caregivers descending on the Drury Plaza Hotel in Orlando, FL. Jen and Brendan chat with about a half-dozen attendees about what this trip means to them. Enjoy!

Producer Joel joins Jen and Brendan for an old-fashioned hang where they talk about all the events going on with the WSA and with all the amazing volunteers around the country. From hosting events to becoming part of the WSA Board of Trustees, there are many ways to get involved. Interested in helping out the WSA? Reach out to us at podcast@williams-syndrome.org.

It's a very special "Back to School" episode! WSA Educational Consultant Michelle Self joins us to discuss all things IEP and class inclusion! She shares examples from her own life with her son, Alex, and her work with Jen's family. From calling IEP meetings to figuring out what "class inclusion" looks like for your child, Michelle is available to answer your questions at mself@williams-syndrome.org Due to the importance and complexity of Individualized Education Programs, the entire episode is dedicated to this discussion. Contact the podcast at podcast@williams-syndrome.org and join the discussion on the Starry-Eyed Effect page on Facebook.

We're back from camp, recovered from Covid, and gettin' ready for school! Today, Kayla Patak joins Brendan and Jen to talk about Whispering Trails Camp and how she uses that experience to prepare for the new school year. Then, Speech Pathologist Bianca Corozzo discusses her new consultancy with the WSA and how she hopes to help families and individuals with WS find tools to become stronger communicators. You can reach her at bcorozzo@williams-syndrome.org or go to https://www.williams-syndrome.org/consultants-and-partners to learn more and follow the link to schedule a session with her.

Live from Camp!! This episode was recorded on July 31st live from Camp Twin Lakes in Rutledge, Georgia, at the WSA's Whispering Trails Therapy and Teen Camp. Producer Joel and Jen went live on Facebook with Brendan (at his headquarters in CT) to introduce everyone to the fantastic facility we enjoyed (despite the heat). While we promised a new episode, Joel got covid, preventing him from finishing it. Meanwhile, enjoy this rebroadcast of Live from Camp!

Have you read the article on the young woman from Oregon with Williams syndrome who competed in Dressage in France at the Virtus Global Games? Oh you have? That's great because this week Jen and Brendan interview Maddie Woo and her dad, Aaron, about her experience and everything she overcame to make that dream happen. Then Producer Joel steps in for Jen (who is very busy) to interview Cassandra Davide and Kim Scheier, team teachers from New York who share their experience running an inclusive classroom that included a student with Williams syndrome.

It's 7q11.23 Day! Jen and Brendan are joined by Kieran Devin Johnson, a young man from the Denver area who loves both paintball and  @Southwest  Airlines! Seriously,  @Southwest  , you must give this guy a listen! The Geneticist and WS Mom Jocelyn Krebs teaches Jen and Brendan about the importance of 7q11.23, what it means, and her wonderful artwork to help us celebrate this once-a-century event!

As Jen was returning home from her trip to Rhythm Nation, Joel and Brendan caught up with Steph to talk about the exciting developments going on in her life. Then, Brendan and Jen talk to Victoria and Alexandra Birch (thebirchfamilyllc.com) about their life on social media and their mission to spread kindness to everyone! Got a question for the show? Write us at podcast@williams-syndrome.com

Whew! Jen and Brendan are back after a week off recovering from Awareness Month! This week, Tyler Levy from Louisville, KY, joined them to discuss the importance of workplace inclusion, community support, and self-advocacy. He's followed by Dr. Barbara Pober, who has been at the forefront of genetic research and care for Williams syndrome for over 40 years. Her tireless work to understand WS continues today, seeing patients and conducting studies on all aspects of the WS lifespan.

You know the song that you hear at the beginning of every episode? Our first guests, Mariella Elm and Tommy Barbarella, wrote that song. Mariella is 17 and has Williams syndrome, and her dad has been a professional musician for years, playing with such artists as the Jonas Brothers and Prince! They join us to discuss their musical, "The Girl Who Cried Different." Next, Kristen Van Handel talks to us about working for make-up giants Sephora and knowing that beauty can come in all kinds of packages! Did I mention Stella's back for a bit? Oh yeah, she's back!

This episode is going back in time with Dr. Marty Levinson! He sits down with Jen (with Stella!) and Brendan to talk about Williams syndrome's early days and the WSA's beginnings. Then they are joined by Coco and Aaron Lombard, a sister and brother team from Phoenix (by way of New Orleans). They discuss finding Williams syndrome resources later in life and what it was like finally finding community! Write us at podcast@williams-syndrome.org and don't forget to like and subscribe! The video version is available on the WSA YouTube channel and on The Starry-Eyed Effect group on Facebook.

This week, episode 1 guest Brendan Lemieux is now episode 8 guest host! He and Jen talk to the President of the Canadian Association for Williams Syndrome (CAWS), Melanie Côté, about her journey to create real job opportunities for people with developmental disabilities by creating her own donut shop, Do Good Donuts. Then they're joined by Joanne and Morgan Jane Starkman. Joanne and her husband created Innersense Organic Beauty, a line of all-natural haircare products. Morgan is the Director of Joy for Innersense and once you meet her, you'll see why! Reach out to us at podcast@williams-syndrome.org and follow us on our Facebook page! Rate and subscribe to our channels on YouTube and Apple Podcasts - or wherever you get your podcast delights!

Steph is back!! She makes a brief appearance to give an update on her health and what's going on in her life! Then Jen and Producer Joel talk with WSA Educational Consultant Robin Pegg about the work she's doing to change how we think about education and our young people with Williams syndrome. Then they talk to Amy Nussbaum, mother of 4 (including Libi, who's 5 and has Williams syndrome), advocate, and member of the WSA Board of Trustees, about spreading awareness of WS in the month of May and her work to increase diversity, equity, and inclusion in our community.

Jen and Steph have barely recovered from last week's episode, but they are excited to welcome Kate Bierfeldt from Massachusetts, to talk Broadway Musicals and friendship! Then they're joined by Outshine Labels founder and CEO Jessica Connor to talk about raising awareness through shirts and apparel! Email us at podcast@williams-syndrome.org. For more on Outshine Labels, go to www.outshinelabels.com

This week is an extra special, extra large, extra energy show! Jen and Steph welcome Jimmy Luv and his dad, Big Jim, to the show to talk about life with Williams syndrome and spreading joy and happiness through his work with Chaos and Kindness! Bonus Treat: Justin Spencer from Recycled Percussion drops in to talk about the special friendship between his family and Jimmy! Email us at podcast@williams-syndrome.org